Resumen

BASTIDAS ACEVEDO, Miriam; ARIZA MARRIAGA, Gustavo  y  ZULIANI ARANGO, Liliana. Maternal experience of raising children with Down’s Syndrome: Between joys and sorrows. Arch Venez Puer Ped [online]. 2013, vol.76, n.4, pp.151-158. ISSN 0004-0649.

Mothers recognize that raising children with Down's syndrome has multiple cultural, social, and emotional meanings that are experienced during the different stages of their children’s life cycles, each of which leads to joys and sorrows. Objective: to know the maternal experience of raising children with Down’s syndrome in the city of Medellín-Colombia. Methodos: Ethnographic research with ethical posture, participation of 20 mothers, by means of semi-structured interviews and field observations. Analysis of data was performed concomitantly with collection. Results: Given social preconceptions The parenting experience starts in most mothers of this research with a great sadness in the initial meeting with their child with Down’s syndrome,. Later in this relationship appears the joy and loving nurture as a possibility of interaction between mothers and children. Discussion: The initial sadness turns into joy as the mothers see the potentialities and achievements of their children, as well as with the loving relationship that is built during parenting. Much sadness is due to the exclusion that mothers experience in different environments while joy is related with the child and his o her achievements. Conclusion: The mothers in this study believe that parenting of children with Down;s syndrome is grooved by joys and sadness; appropriate support in different environments renders this a positive experience for children with Down’s syndrome and their families.

Palabras clave : Down syndrome; Parenting; Intellectual Disability; Trisomy 21.

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