Resumen

CONTRERAS CALDERON, Angélica Luna et al. Parent’s reaction to the communication of the diagnosis of a child with down syndrome. Arch Venez Puer Ped [online]. 2014, vol.77, n.2, pp.70-74. ISSN 0004-0649.

Down syndrome is a clinical and genetic entity whose family impact originates from the notification of the diagnosis. The way in which this notice takes place and coping by parents can define the acceptance of children with this condition. Objective: To evaluate the circumstances of notify the diagnosis of Down syndrome and clarify the attitudes, reactions, knowledge and concerns of parents regarding their child's condition. Patients and Methods: A descriptive, observational and transversal study, in which a poll previously validated by experts was, applied 30 parents whose children have diagnosis of Down syndrome. Results: The diagnosis of Down syndrome was performed in postnatal stage in 93,33% of cases. The communication scenario of diagnosis was in a quiet and private environment in 86,67%, with participation of mothers with baby in arms in 76,67%. At the notice were identified 60% of partner support and 66,67% of the group family. Discussion and conclusion: Notification diagnosis of Down syndrome to parents comply in most cases with the ideal conditions described in the literature. Should promote prenatal diagnosis in those pregnancies at risk of having children with Down syndrome, early acceptance to be promoted and achieve family support and adequate medical.

Palabras clave : Down syndrome; Diagnosis; Communication; Parents; Family.

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